World Down Syndrome Day: “Leave No One Behind”

This year on World Down Syndrome Day 2019, the charge and call of action for every person with Down Syndrome and the advocates who support them is to tell the world to “leave no one behind.” Every person with Down Syndrome is capable, deserving, and worthy to live a full life with equal opportunities. In a world where many are self-focused and driven in their own paths for life, our brothers and sisters with Down Syndrome often face exclusion and discrimination and are often “left behind.” This is especially true for our waiting children.

I had the chance to sit down with an adoptive family, Ross & Tamara, currently in the process of bringing home their two-year-old daughter from South East Asia for an interview. Here is a snippet of what we discussed.

  • What should other families considering adoption know about Down Syndrome?

Down Syndrome is often looked at in a negative light, but there is life and life abundant in parenting a child with Down Syndrome. Above all, she will be our daughter first, our daughter who also happens to have Down Syndrome. Down Syndrome will be a small part of her journey here on this earth, but it will not define her journey. There are opportunities to live a full life and many children are capable of holding jobs, driving cars, and going to college. Yes, parenting a child with Down Syndrome might add more to your life with things like speech therapies, visits to the doctor, and advocating for schooling, however, parenting a child with Down Syndrome will add more to your life in other ways; filling your heart with joy, having a love for others, and caring for the least of these. A verse that we have been praying over our family has been Psalm 68: 5-6; “A father to the fatherless, a defender of widows, is God in His holy dwelling, God sets the lonely in families.”

  • When was your heart first stirred towards parenting a child with Down Syndrome?

My heart was first stirred towards parenting a child with Down Syndrome when I read the article, Where Have All the Kids with Down Syndrome Gone?. The article focuses on the increased rate of abortion when a diagnosis of Down Syndrome is given. As a pro-life family, we want to walk in truth and walk in action. If we are fighting for pro-life, we should also fight for the children that are waiting and take action to support them. For us, that means adoption, for others, that might mean advocating.   

 

  • What does your community and support system look like?

Our community does not have many families that are parenting children with Down Syndrome, however, we have found several online communities and forums that are so supportive and available to answer all of our questions. Our church community has also been very supportive! They have come alongside of us and are praying and patiently waiting for the arrival of our daughter into our community. Our local Regional Center and school district offer plenty of early intervention and educational resources that we are so excited about accessing once our daughter comes home!

 

Let’s stand beside our friends with Down Syndrome and be a part of leaving no one behind! Here are a few links to increase your knowledge of Down Syndrome and to advocate for our friends. Let us know some of your favorites!

Resources about Down Syndrome and Parenting children with Down Syndrome:

https://www.heatheravis.com/the-lucky-few-the-book

https://reecesrainbow.org/

https://www.ndsan.org/

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